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Basically in younger ages you don't feel much pain, but as the M.D. progresses basically you lose your balance and fall alot. I walked on my tiptoes because my tendons were too tight which is like having cramps in your muscles all the time. By the time I was in a wheelchair, the pain and cramping had stopped. I was 7 then...By 9 I was in an electric chair because the tendons and muscles shrunk i have all the sensation in my body like you, but i cant scratch my own nose. That's pain... lol. That being said, the older I get the more pain there is. My bones are squishy and are easy to break which I have done a few times.Back gets sore due to the curvature of my spine ...gravity sucks. You also sit all day which gives me a numb butt and hurts my tailbone. The worst thing for me is the fact that the diaphragm muscles got to the point I needed physio every time I got a cold so I could cough up the crap in my lungs. Cracked a few ribs here wasn't fun. I got so sick that needed medical intervention. I ended up on a trache and ventilator that breathes for me (m.d. means muscles don't work... try to flick that spider off your hand...cant move, that's also painful) Getting suctions to remove the excess secretions in my lungs that builds up because i cant cough means that my lungs get a rubber hose shoved in them all the time and it scratches and cuts the lining of your lungs so it bleeds and burns which can also lead to illness. The final for me would be the microtears I get in my muscles every two to three weeks. Its like spraining your ankle all the time same kind of pain. It is not unmanageable, I use medical cannabis. It helps stop cramping and relieves tension and tightness in muscles as well as numbing the microtears and muscle aches. I am 31 and hope I have answered your question.

Dale

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14y ago

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