Life with Prader-Willi syndrome

Answer 1

Life with Prader-Willi can be a difficult ride. Individuals with prader willi have a hard time ever feeling full. One of the scariest things is that someone with prader willi can actually eat themselves to death if they do not control themselves. Individuals with prader-willi have been known to self mutilate (not all individuals, but some do). If someone with prader-willi chokes it is possible that they can throw up their insides. A lot of individuals with prader- willi are slightly mentally retarded, but not all. People with prader willi have weak muscle mass, short stature and have distinct facial features. A lot of individuals with prader-willi are obese because of the fact that they simply never feel full. There is a place that specializes in Prader-willi somewhere in Florida. The best thing to do if you know someone who has Prader-willi syndromo is support them, they really do have to struggle every single day with diets. Watch the kitchen..i know it sounds inhumane but in the long run it is for the best for the person with prader-willi, remember they can literally eat themselves to death because they never feel full. And someone with prader-willi should do some sort of exercises or physical therapy because they do have very low muscle mass. I worked with someone who had prader-willi and this is what I know.

Answer 2

No cure yet. Therapies to improve muscle tone and feeding techniques to improve weight gain. Strict control of food intake to prevent obesity (growth hormone therapy improves muscle tone). Special education.

Answer 3

My Prader Willi person is 56 years old