How can you live with hunters syndrome with no cures?
How can someone with Hunter's be defined as a mild case when he or she may be producing only 1% of the enzyme needed?
1 person found this useful
I had all the symptoms of Burning Mouth Syndrome. My family doctor prescribed a medicine used to treat the chicken pox virus (herpes). Thankfully all may symptoms went away wi…th no recurrence. . What is interesting is that even though I have already had chicken pox when I was little, the BM symptoms began a few weeks after I had come in contact with a child who had chicken pox. This may be the reason for burning mouth syndrome knowing that the herpes virus effects the nerves in the mouth. . It is worth asking your doctor about !!!!!
There is a treatment but no cure. Biomarin is developing an Enzyme Replacement Therapy for Morquio. They are expected to announce Phase 1/2 results shortly and from initia…l data (1mg/kg) efficacy and safety seem promising. If everything continues to look good a Phase 3 study could begin late '10/early '11 and if those results are positive the therapy could be on the market possibly as early as late '12. Getting into a Phase 3 trial would probably be the quickest way to get treatment though one could be randomized to Placebo. The possibility of compassionate use/early access exists as well. There was another company in earlier stages of development for an Enzyme Replacement but I believe they had (financial) problems.
Yes! Cowbell is the cure for peter pan syndrome. All you have to do is play the cowbell to the kid and their fish (if they don't have a fish get them one) and they will be cur…ed! This is not guaranteed and may have side effects including having an alliance with Captain Hook, crushing dreams FOREVER, and losing your love for cowbells and fish. I tried on my fish once, it died.
no, there is not a cure for WHS. Sadly but there are ways for the child to live a long and happy life. Ask your doctor or the hospital they can give you more info.
As of right now, there is no known cure for Prader-Willi Syndrome.
I have suffered with RLS for many years, after many trials of different prescriptions, I am now using an antidepressant called Trazadone, and in the last 3 months I have only …suffered with my RLS once. I am sure this won't work for everyone but it did work for me, I used to suffer at least 4 times a week, leading to chronic insomnia.
See the link below:
The prognosis for recovery from TMJ is excellent for almost all patients. Most patients do not need any form of long-term treatment. Surgical procedures to treat TMJ are quite… successful.
There is no cure for TS
The severe form is associated with progressive mental retardation and physical disability, with most individuals dying before age 15. Males with the mild form of Hunter syndro…me usually have normal or near normal intelligence
Hunters syndrome is a rare genetic disorder that happens when an enzyme malfunctions or is missing completely. Unfortunately, there is no cure for Hunter's syndrome at this ti…me. There are some treatments that can help minimize the symptoms. These treatments include enzyme therapy, gene therapy, and bone marrow transplant.
TSS lasts as long as three weeks, and has a tendency to recur. About a third of the women who are treated for TSS have it again within six months. In addition, TSS can affect …the liver, kidneys, lungs, and other organs
There is currently no cure for it, although many doctors do think that a lot more people have it than there are currently known to be, as Ehlers-Danlos can sometimes be unnoti…ced for years, or even someone's whole life, even today. It can be managed- for example, I am a person with type II (also known of as the Classical type- I and II are NOT the same, and they shouldn't be treated as such), and so instead of wearing skirts and dresses with thin tights (or, shudder, nothing at all) underneath, I wear thicker leggings and don't climb trees. One can't do anything for the dislocations, and the internal types of EDS can't be helped. One can do family planning with a 50% chance (I think...) of it being correct, but if you are against it (can't blame you, I kinda am too), you can't prevent your kids from getting it and having them be yours genetically. People are currently working on finding a cure, although it is almost as close as some of the cures for cancer.
Yes, if someone is taking to the emergency room in time serotonin syndrome can be properly diagnosed and treated. All serotonin medications must be stopped and in most cases s…ymptoms go away within 24 hours.
No. The legs being fused together are only part of the condition.Many parts of the body, including major organs, are deformed tomissing. The condition is almost always fatal b…efore the end ofearly childhood.